Professor Radoslav Gajanin, Ph.D., Rector of the University of Banja Luka, addressed the attendees at the Conference on Rare Diseases on February 22, 2019, wherein the name of the University he gave full support to the activities organized by the Alliance for Rare Diseases of the Republic of Srpska.
“University has the potential and capacity to establish a collaboration with all of those who are involved in activities whose goal is to improve patient care and empathy for their families. We should establish an adequate model of collaboration between the members of the University, such as the Faculty of Medicine and the Faculty of Philosophy - Psychology Study Program, and the University Clinical Center of the Republic of Srpska, in order to enable our students to acquire adequate theoretical and practical knowledge on rare diseases”, said Rector Gajanin at the Conference on Rare Diseases under the title “Improving the quality of life of families with rare diseases in the Republic of Srpska through the process of educating future professional workers”. The Conference was held at the Faculty of Political Science, University of Banja Luka.
The Rector also said that activities done by the Alliance for Rare Diseases of the Republic of Srpska and their members raise awareness about rare diseases, their treatment and prognosis, as well as the problems that the patients and their families face.
He also expressed gratitude to the ones that are responsible for properly positioning the patients with rare diseases and their families in the public system.
Among other attendees there were: Prof. Ranko Škrbić, Ph.D., Dean of the Faculty of Medicine UBL, Alen Šeranić, Ph.D., Minister of health and social welfare of the Republic of Srpska, and many more.
Alliance for Rare Diseases of the Republic of Srpska was founded in 2015 by the parents of children patients together with associated organizations. The Alliance counts 213 members, with an unselfish help from public institutions of the Republic of Srpska - Office of the President of the Republic of Srpska, Government of the Republic of Srpska, Faculty of Medicine of the University of Banja Luka, University Clinical Center of the Republic of Srpska, the Health Insurance Fund of the Republic of Srpska, the Solidarity Fund of the Republic of Srpska, the City of Banja Luka and numerous funders.
In 2016, the Alliance for Rare Diseases of the Republic of Srpska received the status of a public benefit organization for the Republic of Srpska.